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simont

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Mon 2007-09-17 19:06
Well, that answers that

I've mentioned getting gluten-free foods on prescription a number of times in this diary, and people often ask why I have to get them on prescription and can't just buy them.

This is a good question, and I've wondered it too; you can get a lot of GF stuff in supermarkets, but some products never seem to show up in shops and only seem to be available on prescription. Notably the Juvela products, which are made from wheat with the gluten cunningly removed, and which thereby taste (IMO) rather nicer than the shop-bought alternatives. I've never understood why these have to be prescription-only; it's not as if they contain any legally controlled drugs, for example. And I've often thought I'd prefer to just mail-order the stuff if it were possible, because the inconvenience of getting prescriptions is significant and I'd even tolerate a reasonable price increase to avoid it.

Well, I discovered today that you can buy Juvela products without having to go through the prescription rigmarole. But there's an excellent reason why you shouldn't, and why they don't appear in shops: they're gobsmackingly expensive.

My usual prescription load, for example, is 2kg of flour and 2kg of pasta. For that I pay two normal prescription charges, i.e. £13 or thereabouts, which a quick websearch suggests is about twice what I might expect to pay for the same amount of normal, glutinous flour and pasta. Well, it turns out that I could, if I so wished, order it commercially through a pharmacy – but if I did so, I'd pay a staggering £70.

So that's why nobody talks about that option much. My curiosity is amply satisfied. I had vastly underestimated the gratitude I should be displaying toward the NHS for paying that much of the cost of my staple foods; and that price difference more than justifies continuing to go through the hassle of the prescription mechanism so that they'll continue to do so!

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[personal profile] gerald_duckMon 2007-09-17 18:24
I assume you know about prescription prepayment certificates, by the way? They're cheaper than paying for things individually if you get fifteen or more prescriptions a year.
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[personal profile] simontMon 2007-09-17 22:22
Yes, I tried one out in the first year after I was diagnosed. I had to work slightly too hard to eat enough stuff to make it worthwhile.
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[identity profile] feanelwa.livejournal.comMon 2007-09-17 18:25
*looks at 1kg bag of flour*
*remembers size of 1kg bag of pasta*
That amount of food would cost me about £7. What on earth do they do to justify a tenfold price increase??
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[identity profile] the-alchemist.livejournal.comMon 2007-09-17 19:33
I think it's partly to do with the fact that getting the gluten out of wheat is difficult and expensive, and partly to do with economies of scale - not very much of the stuff is produced.
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[identity profile] cartesiandaemon.livejournal.comMon 2007-09-17 21:47
Ah, that starts to make sense. I assume it's expensive because it's hard to make (and from economies of scale) (rather than simply scalping people). And gluten-free people have to have it, so the NHS provides. But only to people who need it, because what else? They can't just subsidise the production or people'd find some other use for it.
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[identity profile] aiwendel.livejournal.comMon 2007-09-17 22:27
Looks like a list of useful stuff here:

http://www.coeliac.co.uk/glutenfree_living/17.asp

but you probably know about it all. After a quick dabble I've found flour but no prices...

70quid is absolutely mental!!!
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